Love, Kennedy Page #2

proteins build up,

the cells can no longer

function properly.

Okay, so what do we do?

Those who have it not

only lose their sight,

they lose their mental capacity

and seizures become routine.

There is no cure.

I don't know anybody

who's a better person.

I don't know anyone who

deserves happiness more...

Now this?

We're gonna fight it...

There's no way I'm gonna let

this happen to my daughter.

When mom died I...

I don't know...

Maybe it's part of the plan.

Part of the plan.

I wanna see a copy of that plan.

Deedee,

do you understand

what we're telling you?

What the doctor said?

Are you sure?

Daddy,

can we go for a ride?

Right now?

Yay for daddy!

Yay!

Yay for us!

Daddy?

How long 'til I die?

I don't know Deedee.

I hope you live

another 80 years.

But however long it is,

we're gonna make it great.

Where do you wanna go?

Get a drink!

We can do that.

Hey!

Kennedy!

Kennedy stop the truck!

Stop the truck!

No sir, no sir!

Move over sister!

Move over.

What are you thinking?

I got you!

You can barely see!

You are a crazy woman!

Oh, but you are

a cute crazy woman.

To our knowledge,

Kennedy was the only person

in Utah with batten disease.

But through a national

batten network

we were led to

another Utah family

whose little angel

had the disease also.

Her name was Charlee.

As we opened the door,

a feeling entered our home

that was indescribable.

At this point Charlee

was fully blind.

Charlee had not spoken

a word in almost two months.

H-hi

hi.

I'm Kennedy.

We're the same.

Look how sweet that is.

I know.

This song's about us.

When it was time to leave,

Kennedy wrote a note for

Charlee to take with her.

Charlee, you are so special

and I feel your heart!

We will be best friends...

On earth and in heaven.

Love, Kennedy

see ya! Bye! Thanks again!

Bye Charlee!

What an incredible family

oh, I love them.

Bye.

Hey Deedee.

Dad and I got you something.

A stick?

No, it's not a stick.

A golf club?

I think she's messing with us.

I knew it!

I knew it.

Ahh, you are such a punk!

You're so silly.

Though

Kennedy's health was declining,

she was still so excited

about her next step in life.

High school!

High school!

M-m-meee, cheerlead...

The games!

Beau!

Did you make it?

Uh, yeah.

Go wolves!

Go wolves!

Boom wacka wacka,

boom boom wacka wacka,

boom boom wacka wacka.

Even though Kennedy was so

excited about school and dances,

she wouldn't go to

a dance of any kind.

Anna would invite her,

but she wouldn't go.

But every time, on the

night of these dances

Kennedy would wait

patiently for Anna...

Right by the door.

Let's go to bed!

Why won't you go to bed?

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